Ontario Renal Network | Reseau Renal de L'Ontario

Jody B

Jody B.
“We need to ensure that primary care doctors have the knowledge and experience to support CKD patients, otherwise patients become hot potatoes that no one takes responsibility for.”

Four hours a day, 3 times a week, every week of the year, Jody B. does hemodialysis at a self-care dialysis facility close to his home. That’s more than 16,000 hours of dialysis over the past 26 years. No wonder Jody says dialysis is like having a second job. And just like a regular job, Jody prefers to keep dialysis separate from his home life.

“When I am done dialysis, I leave it behind me,” he says. “I like that I can go home to my girlfriend, my music and my antiques, and not have a big machine in my house as a constant reminder of my health situation.” At the same time, Jody likes the opportunities that in-facility dialysis gives him to be an equal partner in his healthcare. “I’ve learned about blood values, how to set up my machine and am informed enough to speak knowledgeably about my health with staff.”

He also enjoys the continuity of care that he receives, as he routinely sees the same nephrologist and handful of nurses at all his medical appointments. “They know me and they know my access, which is so important because that’s my lifeline,” he says.

Jody hopes that the implementation the Ontario Renal Plan II will lead to improved organization of care for all CKD patients in Ontario. He would like to see primary care doctors be better informed about early detection and management of CKD, and better communication among all healthcare professionals. “Self-care and better integration of care would save money, and result in healthier outcomes for patients,” he says.