Ontario Renal Network | Reseau Renal de L'Ontario
 

Randy R


 
Randy R.
“I have polycystic kidney disease. I am so grateful for the comprehensive education I’ve received at the pre-dialysis clinic. I know I can’t control the disease, but I can stack the deck in my favour.”

For more than 30 years, Randy R. has lived with the threat of chronic kidney disease (CKD) casting a shadow over his future. Like his late father, Randy has polycystic kidney disease and a history of high blood pressure, which put him at high risk for developing advanced CKD.

Randy is doing everything in his power to maintain his kidney health and prevent—or at least delay as long as possible—the need for dialysis, which his father eventually required. “Having seen what my father went through, I want to know as much as possible about my reality—the good, the bad and the ugly,” he says.

When Randy’s kidney function started to decline and he needed pre-dialysis care, he was grateful to be referred to the Progressive Renal Insufficiency clinic at The Ottawa Hospital and meet with the multidisciplinary team that includes a nephrologist, nurse, dietitian, pharmacist and social worker. “The comprehensive care and education have been wonderful. It is truly comforting to know that such a well-developed network of renal professionals is supporting me.”

Over the past year, Randy has become a “5-star patient,” improving his diet, upping his activity level and losing more than 50 pounds. While his kidney function is now stable, he is starting to think about possible future treatment options. “If and when the time comes, quite a few friends and family have offered to be tested to see if they could donate a kidney for transplant. And in case I eventually need dialysis, I am already talking to the renal team about peritoneal dialysis because of the freedom it would give me.”

In the meantime, he is enjoying an early retirement that includes country living, travel, volunteering and lots of family time with his wife, children and grandchildren.